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Hannah 28th Jan 2010
What a great website!I have just been diagnosed with a Functional Movement Disorder. Ironically I started to recover before I got the diagnosis but I'm still glad I found out about what I have, and that there are other people out there with the same symptoms! Mine started with twitches in my back, and progressed to muscle spasms which pulled my head and shoulders forward.
At its worst it pulled my head down to my waist. I also had a shaking right hand. The spasms were set off my contact (especially to hands and feet) and loud noises like Fireworks. I also had two episodes where I had flailing arms, like I was playing the drums. I've been lucky in that I haven't had any pain, but it has been very debilitating and I've had 3.5 months off work, and for a month of that time didn't really leave my flat. My Gp and Professor of Neurology could not tell me what was wrong, which was very scary. In the end it was a Neuropsychiatrist who gave me the diagnosis. I have found that a combination of alternative treatments and counselling has really been invaluable. I've discovered that I hold tension in my muscles and skeleton which has played a factor in my problems. So, a combination of physical and emotional treatments has really worked. Of course I have paid for all of this myself, if I'd been diagnosed earlier the hospital would have given my occupational therapy, psychaitry and physio-therapy but by the time they told me what was wrong I had sorted myself out by other means (as above). This website is fab - it answers all my questions (is it my fault etc!) and makes me feel like I am not alone. Keep up the good work. More info at www.bourneblogs.blogspot.com
