Download FND app Android Aapp IoS App
FND Links Feedback Donate Language

Marie's Story

Marie has had recurrent episodes of limb weakness along with memory symptoms for many years. She describes the frustration of multiple neurological referrals in her story. She subsequently wrote in on the feedback page (19th Dec 2010) with a follow up post.

I have had these attacks, as I call them, for so long that I cannot recall accurately when they began. But I do know that they did become much worse about three years ago but have improved again now that I have given up work.

So what are they? My symptoms vary usually I have right sided weakness but sometimes I am unable to move either side. My GPs have worked tirelessly to find out what is wrong but this has meant visiting Neurologists all over the country. And every time is an awful experience. I am “up to high doh” so am incapable of explaining myself properly. And I can’t magic up an attack to suit an appointment so often I seem fine. I believed they were suggesting it was all a Psychological issue because I was physically fine. The MRI and CTs were all ok. That belief fed into my anxiety and therefore on seeing the next “man” I was more anxious, less coherent, etc.

On reflection I think they were saying it was probably a functional condition but I had no idea what that meant and no‐one seemed able to help dignose, explain or treat.

Finally I had blindness in my right eye which led to a visit to an eye specialist and then the stroke clinic where a TIA was diagnosed. I was very grateful. At last I had something people could understand.

That led to my giving up work through ill health retirement. If stress was a major part of the condition then things should have been better, but the symptoms persisted: right sided weakness, memory problems, difficulty processing or retrieving information, inability to move.

Eventually I found a neurologist who diagnosed functional weakness with dissociation and memory problems.

Did it help? Not at first. I had seen so many specialists who didn’t know that it was hard to believe one did. And it was hard to trust someone with all of the symptoms having felt other people thought it was “made up” but now thanks to him and this website, I understand I am not alone or odd in this condition.

The next step will be to move from acceptance to treatment. I think we all know that treatment will vary for all of us but being able to feel an attack coming on and sit down immediately is starting to lessen the severity or time of the attacks. I have reorganised my home so that every room has a safe place to rest. My life style has changed a lot. Everything is now thought through with safety in mind. And it is working. I accept that I can’t do the things I used to, going to the gym again is along way off. And I can’t teach again. But there will be other things I can do. And I am finding out how to manage this condition.

Recently someone sent by my insurance company suggested that my symptoms were due to lack of confidence and that with more positive thinking I would improve. I think that people like this don’t understand that long term conditions lead to lack of confidence. If we could magic these conditions away we would.

I do get angry sometimes or frustrated, or weepy. But not often, mostly I think that it is rotten but only sometimes but it could be so much worse.

I have a teenage son. He was preschool when this started and 15 when I gave up work. I think we need to look at supporting our families through these difficult times too. I was certainly trying so hard to be normal and keep things normal for him that I didn’t see his need for an explanation of the events that we referred to as “stucks”.

But we are getting there. I hope you are too.

where does cannabis oil come from does cbd oil test positive on drug test drug tests and cbd oil all the best cbd oil cbd oil temperature using cbd oil for glaucoma closer to the sun cbd oil cali hi 5 cbd oil woman arrested at disneyland for cbd oil are cbd oil shops profitable where to buy cbd oil in starkville ms neem oil on flowering cannabis cbd oil benefits for spd where to buy full spectrum cbd oil cbd oil for stomach pains green roads world cbd oil original nectar normaldoseage of cbd oil for anxiety where to get cbd oil in lawrenceburg tn cbd oil hemp and medical marajuana mixing cbd oil with essential oils for topically cbd oil 1 gram syringes cbd oil from hemp

active ingredient in cialis does amazing sell male enhancement pills tiger pills control male enhancement instant horny how to cure erectile dysfunction without pills libido max for male erectile dysfunction cialis protein with testosterone booster cialis professional review natural ways to increase your libido testosterone supplements and high blood pressure what helps viagra work better gnc products for male libido consumer reports best testosterone supplements big penis supplement vimax male virility enhancement pills arnold schwarzenegger testosterone pills xtends male enhancement cialis 80 mg dosage male enhancement pills mexico natural ways to increase libido

mediterranean diet meal chinese diet pills lida cabbage soup diet weight loss talla baja diet pills redotex foods for weight loss and muscle gain lose 30 pounds in 30 days diet pills detox cleanse weight loss beautiful slim body diet pills suppliers weight loss pill fda approved keto vegan diet weight loss penis size weight loss b12 pills side effects diet pills kohls weight loss pills best fat burning pills for males best belly fat diet pills amino acid diet pills lose weight fast pills india rich slim diet pills any diet pills actually work good diet pills in stores weight loss capsules

energy efficient windows indianapolis repair double hung window sash cord home window repair north phoenix home window repair santa rosa home window repair 75007 egress basement window installation closest glass repair window divider replacement window replacement round rock repair leaking window back window replacement prices window replacement services miata window cable replacement best replacement windows for modernizing home garden window repair home window repair casselberry fl vetter window repair home window repair cedar rapids redwood city window screen repair windows replacement disk window repair missouri city residential glass windows replacement