Download FND app Android Aapp IoS App
FND Links Feedback Donate Language

Laura's Story

Complex Regional Pain Syndrome and Functional Neurological Disorder – do they feel the same to me?

Laura is 40 and was diagnosed with CRPS in 2012 and then subsequently developed FND in 2020. She reflects on similarities of some of the symptoms and learning to create better more ‘fluid’ pathways for limb movement.

My background is ‘sporty’ if you describe it in one word. I am a degree graduate in Physical Education, played county level women’s football, played both Rugby Union and League for a number of years and a competent cyclist and rock climber. All this changed after an Achilles tendon operation in 2012.

After surgery I knew something wasn’t right, I’m known for my pain tolerance but this was something more, the pain was unbearable with the highest level of pain relief not even blocking any of the pain signals to my foot. But some other subtle signs were worrying to me, lack of movement of my left foot, a 5-degree temperature difference of my left leg to right. It was cold and clammy with a waxy texture to the skin.

I spoke up and intervention started straight away, I had an intrathecal catheter (This is a pain relief delivery system into the spinal column) and started intense physio.

This was hard but maybe on reflection this stopped the real damage CRPS can do to the body. I never lost real function in my foot, my foot remained in the correct anatomical position and even with crutches I kept on moving.

My rehab was around 2 years and then I reached a sticking point where I could not tolerate touch which is called allodynia and the pain relief stopped working. I become a recluse and depressed that my body had let me down. I had tried everything and then I had opportunity to have a spinal cord stimulator trial and then a permanent implant. It was so successful I got my life back within months I was able to walk unaided and enjoy sport and the gym again.

With an implant a level of maintenance is needed so every 3-5 years’ time I need a battery replacement.

Recently I had a routine battery replacement where I developed after surgery a right-side weakness and tremor. The tremor was quite aggressive at first but the inability to move my right leg and weakness in my hand was very concerning.

Over hours and days this didn’t change, the tremor lessening but the function of my right side of my body was still an issue. This was something new to me and again physio and time helped some sort of movement. I was told that this problem was functional in nature and I was quite aware of FND as I have a friend who has gone through something similar.

One thing I did know with hard work you can recover and improve your function. This rang bells with my primary diagnosis of CRPS some years ago. The physical feelings were quite similar to CRPS, my limb didn’t feel my own, there was a heaviness when seated, laid down on the bed or on movement.

The main sticking point is creating those pathways again for normal fluid limb movement. I find it difficult to move my leg on demand. I get a headache and it feels like the message from my brain gets turned around half way as the doors are closed to lower limbs. Its tiring and sometimes frustrating.

What doesn’t help is the type of misunderstanding and language used surrounding FND. It’s difficult to describe and responses can be unhelpful if loved ones or strangers think you are faking it. I remember in the early days of my CRPS diagnosis I had to go through this and it doesn’t get easier. I’ve always been an advocate for often invisible disabilities. Rather than making assumptions about what an individual can or can’t do, the best approach is to ask them.

best deal on replacement windows window screen frame repair tacoma home window repair window images blinds installation replacement truck cap windows top home window repair companies st petersburg free replacement windows for low income window installation eugene oregon replacement window for entry door manufactured home replacement windows where can i buy replacement window screens how much does it cost to replace a window new construction window vs replacement window best time to buy replacement windows windex window cleaner replacement pads home depot window repair parts window sill replacement lumber double hung window sill repair replacement glass for storm window home window repair in palmdale ca power window repair peoria who makes the best replacement windows for homes rotted window frame repair how hard is it to install replacement windows double pane vinyl window repair pse window replacement rebate replacement window warwick compare replacement window brands

hemp seed oil for cooking cbd oil is it real cbd oil portage wi can you take cbd oil with trazodone where to buy cbd oil in boise trader joes yoder naturals cbd oil reviews will cbd oil cause a false positive for thc dragon ball cannabis oil spiramint cbd oil spray best cbd oil for schizophrenia ms forums multiple sclerosis and cbd oil dr murakami cbd oil does cbd oil ever cause anxiety 600 mg pure cbd oil beneftis of cbd oil cbd oil and glycerin cbd oil percentage of absorption is cbd oil legal in mass full spectrum cbd oil sales in lancaster pa cbd oil for detoxing from alcohol cbd oil for pharmacy sale can you take cbd oil and st johns wort hwhat is high potency of cbd oil can cbd oil help ed cbd oil by mothers mans cbd oil sensitive teeth and cbd oil hemp oil vs cbd oil for seizures

viagra wiki chinese herbs for sexual enhancement top supplements for men penis enlargement pills pennywise supplements for bigger penis cost of trynoxide male enhancement pills male enhancement in a store near me penis growth with out pills foods for male enhancement size lebmax male enhancement pills black king kong male enhancement penis growth pills australia reload testosterone booster swiss navy male enhancement best male enhancement pills online natural sex drive enhancers foods that increase testosterone levels in men how does cialis work in the body how can you increase your testosterone best testosterone booster on the market gnc dingdong male enhancement pills sex voltz tablets natural enhancement are male enhancement pills bad on your heart is penis enlargement possible 5 best penis enlargement pills staminol vs viagra penis enlarghement pills where to order black storm male enhancement pills

cleansing teas weight loss keto food diet meditation to lose weight warrior diet keto balloon surgery for weight loss yes u can diet pills how to measure yourself for weight loss lose weight quotes oatmeal diet weight loss results what are some good diet pills that really work how to lose weight with a busy schedule lifestyle change for weight loss why is the keto diet bad for you chiropractic weight loss programs 2 day diet pills reviews reviews on alli diet pills fastest way to lose weight pills average weight loss in a week heart palpitations on keto diet best quick diet pills 7day diet pills carnivore diet weight loss natural model diet pills max weight loss pills best foods keto diet khloe weight loss redlines weight loss pill weight loss and exercises